Did you know that University of Miami investigators have access to a vast research infrastructure through the statewide OneFlorida Clinical Research Consortium?
What is the OneFlorida Research Infrastructure?
It has two levels. The first is a central repository of patient-level, HIPAA-limited electronic health record and health insurance data transformed into a common data model, called the OneFlorida Data Trust. The second is a statewide practice network presenting opportunities to engage clinicians and patients in diverse health care settings through interventional studies.
Who makes up its network?
Consortium partners include the University of Miami, University of Florida, Florida State University, the three universities’ affiliated health systems and practices, the Florida Agency for Health Care Administration, which oversees the Florida Medicaid Program, and more.
What’s in the Data Trust?
The Data Trust contains claims and encounter data for Floridians enrolled in Medicaid and electronic health record data from public and private health care systems that are consortium partners. In other words, 15 million patients, 463 million encounters, 4,100 providers, 1,240 practices and clinics, 22 hospitals, in 67 Florida counties.
How can I utilize this for my research?
You may want to use the OneFlorida Infrastructure to:
- Request a prep-to-research data query. This free service can be used to help formulate research questions or learn more about the data available in the OneFlorida Data Trust. To use this service, researchers must complete an application. Queries are reviewed bi-weekly by the executive committee.
- Obtain and use patient-level or practice-based data from the network, PIs must complete an application, which must be approved by the OneFlorida executive committee and the OneFlorida centralized IRB. Use of this service may involve fees.
- Schedule a research consultation.
- Get data-related support, study implementation support and research training.
- Obtain a OneFlorida centralized IRB.